About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Thursday, February 2, 2012

9 Month Check-Up

So I took Coltyn for his 9 month well check at the ped today.  He is doing very very well.  He is still in the 3% for his weight but considerin he is gaining and not loosing we are good!!! He is 16.13 pounds and 27 1/4 inches tall.  He is in the 25-50% for his height.  His head is also ont eh smaller side, LOL, it is in the 3-5%.  I am fine with all of this though.  He is growing, gaining weight, and developing well.  That is all he needs to do!!  The ped couldnt believe he was 9 months already and she couldnt believ how healthy he looked.  I thank god every day for my little guy and how well he is doing with this crappy liver disease.  So all in all it was a GREAT check-up.  He did have to get 1 shot but other then that he was a happy little boy. 

I have been a little emotional latley with all this for some reason?  I just look at how some people take so many things for granted and just think they deserve everything and dont think twice about family.  I am just blown away at this.  I know it shouldnt bother me but it really does.  I look at life in such a different view then many I guess.  I cherish EVERY minute I get to spend with my family and appreciate what they do for me.  I wouldnt have been able to deal with this without many of them.  I just wish everyone looked at life like this and did things for others and didnt compare themselves and think they are better.  I sat and held Coltyn last night in his room in his rocking chair and just thought how lucky we really are to still have him in out lives and how well he is still doing, and that we have a home and have a healthy 2 almsot 3 year old daughter and that my husband and I both have jobs.  I pray every day for those people out there struggling and going through hard times.  Liver Disease sure dies suck but has opened my eyes to way more then I ever realized. 

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