About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Monday, January 9, 2012

Update

So it has been 4 weeks since Coltyn has been t the doc and he did start last week with lighter colored stools for 2 days so we decided to call GI and they said to watch him over the weekend and told me things to watch for: big belly, fever, not eating, and jaundice.  Well none of that happened and as of Sunday he was back to regular color!!!! Very happy about that.  I also took him to get his weight checked as I dont think he is gaining very much, and I was right.  He was only up 8 ounces from his last appointments with GI.  He went from the 6% to the 3%.  The ped said she was not to concerned and that we will just wait it out and see how he does when he comes in for his 9 month checkup in Februray.  He went from 15.11 to 16.3!!! He still has not doubled his birth weight!!! O-well I am ok as long as he is gaining and not losing!!! He is still taking his antibiotic until we are out which will be here in about 1-2 weeks then we will see how things go without it.  So things are going pretty good, just take 1 day at a time. 
Posted by at

2 comments:

  1. KarenJanuary 9, 2012 at 7:08 AM

    You're a very strong woman Kristin. I hope nothing but the best for you and your family.

    ReplyDelete
  2. ErinJanuary 13, 2012 at 7:07 AM

    I'm so glad that Coltyn is doing so well! We are keeping Coltyn and your family in our daily prayers! *Hugs* from Liverland!
    -Erin, David, Ethan, and Elise Babin

    ReplyDelete

Subscribe to: Post Comments (Atom)