About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Friday, June 1, 2012

LABS LABS LABS

Well Coltyns cholangitis doesnt seem to be going away with the oral antibiotics.  His labs keep going up each week we have them checked. We are to have labs doen for the next 6 weeks once a week.  So when we left the hospital some were trending down while others were going up but this week everything went up. BUMMER!!!! We are still waiting on the doc to call us and let us know what she thinks we need to do.  I just dont understand what is going on but we will see soon.  Here is a little spreadsheet of what labs should be and what his are right now and what they have been the last 3 weeks.

(NORAML range)                  May 21,2012           May 26,2012               June 1,2012
      
ALT (5-50)                                185                             183                            192          
AST (10-60)                              61                               110                            113
ALK Phos (110-320)                 682                             640                            797
GGT (7-32)                                173                             258                            319
Total Bili (0-1.3)                         1.4                              .5                                .2

So this is pretty much how it has been the last 3 weeks.  Not that is makes any sense but all the above deal with the liver function so they should and need to be in the normal range.
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