Liver doc check-up

Well it has been a year since Coltyn had his kasai and he seems to be doing well.  We did have that 1 bout of cholangitis but he seems to be recoverying well from it now.  His AST ALT and Bili are all NORMAL again!!! YAY But his GGT and Alk Phos are still high but they seem to be trending down, which is what we want. The Liver doc said that the 2 that are still high are the ones that take the hardest hit with cholangitis so she wasnt concerned.  I was so happy that Coltyn FINALLY gained some weight again!! It has been since February!!! He is close to 19 pounds!!! He hasnt grown much but I am going to wait and see what he does at his 15 month check up before I get worried about that!!! So all in all it was a good check up.  I am nervous about stopping his antibiotic again as last time we wound up in the hospital but we will stop that in a month then we will also stop his vitamins and see what happens from there.  I am crossing my fingers things go well so we can stay off them both but not holding my breathe. LOL Coltyn also got the OK to go to Florida in September!!!! WOOHOO!!!!! They did remind us that things can change on a dime but we will go forth and plan on heading down south in September unless something happens where we cant go, but we will just take it a day at a time like we do everyday!!! I HATE liver disease but we cant chaneg it and we just have to live with it. Things could be a tons worse then they are so I count my blessings each and everyday!!!! I couldnt ask for more!!! Coltyn is to follow up with LIver doc and Surgeon in 3 months since he had the episode of cholangitis a month ago.  Hoping numbers are all NORMAL so we can graduate to every 6 months!!! So his next appointment will be Septmeber 25!!!! I am also happy to report that Coltyn has taken a few steps and is crawling everywhere!!!!! It only took him 13 months to do it but he has!! :)