About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Tuesday, November 1, 2011

6 Month Check-up

I had my 6 month check-up today and I was a big 14 pounds and 25 1/2 inches long!!!! I am growing like a weed!!!  My peditrition told my mommy that I am developting GREAT and doing everything that I should be for my age and plus some!!!  When you have Biliary Atresia youa re usually behind in some of your development due to the lack of nutrition and time since you have such a rough start. As of right now I am holding my own and doing GREAT!!!
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