Liver Check-up

Well all in all Coltyn got a GOOD report yesterday from his liver doc and his surgeon.  His labs were good which they usually are, his ultrasound was a little changed but they said they aren't worried about it as it looks like all other kids with Biliary Atresia.  The surgeon felt his liver and said it felt ok to him not great but like other kids with BA.  LOL well I guess that is a good thing since we do know he has BA. The surgeon told me with what the ultrasound shows is normal for these kids and he siad the main focus is that the blood flow is still really good which that is a major thing they look at as they said it can be things progressing but they arent worreid at all as it is nothing major.  Coltyn is still very small but liver doc isnt to worried about that as she said hubby and I arent big people so he may be taking after us.  He is only 23 pounds and 32 inches tall at 2 years old. 3% for weight and 12% for height. She did tell us to keep giving him high calorie foods and that kids like to eat more early on in the day then the evening so if he wants somehting that is high in calories in the morning but not a breakfast food to just give it to him and let him have it.  She said there is nothing that says they have to eat breakfast foods in the morning. So we are gonna just keep pushing the calories to try to get him to gain and grow a little more. The surgeon and liver doc said they both think that we dont need to come back for 6 months!!!! That is AWESOME news.  I was concerned as we havent ever made it 6 months without a doc visit or a hospital stay.  They BOTH seem to think that Coltyn is doing well enough we can try to go 6 months so we are doing just that.  His liver doc did say that we are to stay on the antibiotic the whole time as when we go off he gets cholangitis so she said we will just keep on it and re-evaluate when he comes back in 6 months.  So this means that we are HOPING to have a hospital stay FREE summer.  We havent had this since Coltyn was born.  He has been in the hospital 8 times in just 24 months of life.  So we are hoping and praying that things keep going well and that we can make it 6 months without anything going wrong!!!!! Thanks for all the thoughts and prayers!!!!! I am having such a hard time with Coltyn turning 2 in a week!!!! I dont know where the time has gone other then lots of time in the hospital and doc visits, but he is a fighter and WILL keep FIGTHING!!!!!!

Hospital Stay- March 26-27, 2013

Well we had to take Coltyn into Children's on the 26 as he started vomiting at the sitters and the ped wanted to see him to check him out.  HE got sick on the way home from sitters and then a few times at home and then again on the way to the ped and once at the ped and then again on teh way home from the ped.  Poor kiddo couldnt even keep water down.  He hasnt been around anyone thet we knew of with the stomcah flu so the ped wanted him to get checked out at Childrens since vomiting like this could mean other thinsg with his condition.  So we got everything ready and things organized for Kendyl and headed down to Children's.  On the way down he got sick a few more times and then finally fell asleep, but you could still tell her didnt feel very good at all.  Once we got there they took labs to check his liver and then they also did an x-ray as with is major abdonimal surgery he could have an obstruction from teh scar tissue.  The x-ray did show that he had a little back-up but they were not to worried since he had pooped earlier in the day.  His labs showed that his liver was good and that shouldnt be the problem, but the labs also showed that he was dehydrated and they decided that it would be BEST if we stayed the night to monitor him and get him some IV fluids so try to rehydrate him. So we were admitted and once we were on the floor they decided to do an ultrasound as Coltyn is Coltyn and doesnt follow the norm with cholangitis. AS in January his labs were perfect but his liver was inflamed and his ducts were dialated which means he probably had the start of cholangits.  So we had the ultrasound done on the 27th to make sure things were happy and they were for the most part.  HIs liver was a little inflamed but no other issues.  So that was a good thing.  They decided to let him try to eat and drink and see what happened and said if he kept that down then they would let us go hom that evening.  Well Coltyn did very well and kept everything down so we could go home.  Thank goodness that was a SHORT hopital stay as those are hard on a person.  Since being home he has been getting back to himself for the most part.  He does have a cold right now, but he seems to ALWAYS be sick with something.  We did have to follow up with the ped on 4/1 and she said that everything felt great and that he looked good too.  So if everything goes as planned we should be doctor FREE until the 23rd of this month-April.  He goes back to see liver doc, surgeon, have labs, ultrasound, and then his 2 year evaluation all done on the 23rd at Childrens.  Thanks for all the paryers and thoughts for my sweet little guy.   

We did have a GREAT Easter as well!!! It was a rough week leading up to it as Coltyn was in hospital and then I was in hospital as well, but we were BOTH at home and had a nice time with family.  I have included a few pics from Easter of Coltyn and his big sis!!!