9 Month Liver Check-up

WOW what a 9 months it has been.  We went to the St. Louis Childrens Hospital on Tuesday, March 20, 2012 for some follow up appointments.  prior to my appointments with the specialist we had to have a blood draw and an ultrasound completed.  So we got there about 8:15 am and had the blood drawn then went downstairs to have the ultrasound done.  Man did Coltyn NOT like the ultrasound or blood draw for that matter!!! O-well we got it all done then we went up to the 10th floor to see if there were any nurses that had taken care of him there and we did get to see them.  They said they couldnt believe how healthy he lookd and how big he has gotten.  I was very happy that we got to see them.  Then we decided to go out to the rooftop garden to kill a little more time.  Coltyn LOVED that place when he was in the hospital.  He liked anything but the room.  So when we could get out we did.  Anyways then came the time for his appointments.......... I was so nervous that we were going to get bad news, but Dr. Turmelle was the first one to come in and see him and she said that he looks GREAT and that he was her model patient, she wished all her BA kiddos looked like this.  SHe said by looking at his labs and ultrasound you wouldnt know he had BA.  The kasai is working wonders for him at the moment.  She also said we will take it when we can get it.  I was relieved to hear this but also I know that it can change in no time.  I am hoping that things stay like this but also I realize they more then likely wont.  Then Dr. Dillion came in and said how well he looked.  The only thing that they are a little concerned about is his weight gain, he went from the 5% down to the 1% for this.  Dr. T did say we will see what happens in June when we come back and then go from there.  She said we really couldnt use the last 3 months as a guide cause Coltyn has been sick with 3 ear infections since the end of January.  So we are talking tubes here very very soon I think.  So all in all we had a GREAT check up and I am so happy for that!!! THANK YOU GOD!!!!

I am having a little trouble here lately grasping why GOD has chosen Coltyn to do so well with the kasai and not all the other babies out tehre that are struggling to make it.  I just sit and think then I cry a little cause I just wonder why he chose Coltyn?! I am blessed dont get me wrong but why is he doing so well?! That is the question I often ask myself.  I just feel awful when I see all the posts out there about the kiddos that are being transplanted and think why are we so lucky?! I dont even want to post on the LIVEr group how well Coltyn is doing casue I feel awful!!! O-well I guess this is soemthing that I will have to overcome and learn to deal with.  We go back June 19, 2012  to repeat all the testing to see how he is doing then!!!! Until then we are just going to enjoy the summer and the beautiful weather!!!!

9 Months Post Kasai

WOW it has been 9 months since kasai to the day!!! I cant believe that is has been that long already!!! I remember that day as if it was yesterday. AWFUL AWFUL!!! I was a nervous reck and didnt eat all day long cause I thought if he cant eat neither can I.  All i wanted to do was sit and cry but I had my wonderful husband and family there to support me and help me through it.  I was so scared that we were going to lose him and that he was to little to be going through this, but the nurses and doctors knew how to put my mind at ease, well a ltitle. I was still so scared for my little guy.  I just cried when I saw him after surgery cause there was nothing that I could do for him.  The nurse in PICU told me that I needed to take a break and that he was going to be fine but I wouldnt.  Thankfully my mom stayed that night with us so she came in teh room with him so i could go rest a little.  I felt so sick that night cause I didnt eat and had myself so nervous and scared all day long.  I felt awfu leavingmy daughter that had just turned 2 before Coltyn was born and NEVER stayed a night away from until Coltyn was born then to throw this on top of it was just horrible, but we made it and Coltyn is doing amazing.  I am soooooo happy that he is doing so well. I thank god EVERY day for giving him to me and giving me the strength to get through this.  It has truely made our family stronger and appreciate things way more then we did.  We go back to see the surgeon and the GI docs on Tuesday, March 20, 2012.  I am sooo nervous that they are going to say that something is wrong just because thinsg have gone so smooth.  I will update after the appointments: Gi, Surgeon, Ultrasound, and Bloodwork.