About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Thursday, July 19, 2012

Coltyn....well being Coltyn!!!!

Sfar things have gotten better since Coltyn had the cholangitis.  His labs were looking better at his liver check-up in June and he was acting more like himself.  The first week of July Coltyn threw up 3 times that week, but Steven and I THOUGHT we had a reason for all 3 times??? LOL The first time was on Tuesday the 3rd and we were eating at Applebee's in Washington and we gave him broccoli, which he has never had, and he threw up after eating some of that so we thought it was just that he didnt like teh broccoli.  Then on the 4th he got sick again before bed, but he was throwing such a fit about going to bed we thought it was the fact that he had himself so worked up so e didnt think twice about it.  Well then on Thursday morning the 5th he did it after we gave him his medicine, but we thougfht it was just from the medicine. So that was it for that week he was good to go until the next Thursday July 12.  On the way to the sitters he decided to throw up all over the car. So then I called the ped and she said she would like for me to call the liver doc and get labs done and then if those were ok we could all relxa a little.  So we had labs done and they were good and didnt show any signs of dehydration at all.  But on firday morning he threw up once again right after we gave him his morning meds.  The liver doc said since his numbers were ok she wanted to see what he did over the weekend and then take it from there.  If he continued to get sick then they would do an upper GI to check for obstruction.  This can happen from scar tissue from teh kasai.  Other then this he has been pretty good, besides not sleeping!! LOL but I will take that over everything else.  So as far as this week goes he hasnt gotten sick and he seems to be doing good. Hoping it stays quiet!!!!