About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Thursday, April 4, 2013

Hospital Stay- March 26-27, 2013

Well we had to take Coltyn into Children's on the 26 as he started vomiting at the sitters and the ped wanted to see him to check him out.  HE got sick on the way home from sitters and then a few times at home and then again on the way to the ped and once at the ped and then again on teh way home from the ped.  Poor kiddo couldnt even keep water down.  He hasnt been around anyone thet we knew of with the stomcah flu so the ped wanted him to get checked out at Childrens since vomiting like this could mean other thinsg with his condition.  So we got everything ready and things organized for Kendyl and headed down to Children's.  On the way down he got sick a few more times and then finally fell asleep, but you could still tell her didnt feel very good at all.  Once we got there they took labs to check his liver and then they also did an x-ray as with is major abdonimal surgery he could have an obstruction from teh scar tissue.  The x-ray did show that he had a little back-up but they were not to worried since he had pooped earlier in the day.  His labs showed that his liver was good and that shouldnt be the problem, but the labs also showed that he was dehydrated and they decided that it would be BEST if we stayed the night to monitor him and get him some IV fluids so try to rehydrate him. So we were admitted and once we were on the floor they decided to do an ultrasound as Coltyn is Coltyn and doesnt follow the norm with cholangitis. AS in January his labs were perfect but his liver was inflamed and his ducts were dialated which means he probably had the start of cholangits.  So we had the ultrasound done on the 27th to make sure things were happy and they were for the most part.  HIs liver was a little inflamed but no other issues.  So that was a good thing.  They decided to let him try to eat and drink and see what happened and said if he kept that down then they would let us go hom that evening.  Well Coltyn did very well and kept everything down so we could go home.  Thank goodness that was a SHORT hopital stay as those are hard on a person.  Since being home he has been getting back to himself for the most part.  He does have a cold right now, but he seems to ALWAYS be sick with something.  We did have to follow up with the ped on 4/1 and she said that everything felt great and that he looked good too.  So if everything goes as planned we should be doctor FREE until the 23rd of this month-April.  He goes back to see liver doc, surgeon, have labs, ultrasound, and then his 2 year evaluation all done on the 23rd at Childrens.  Thanks for all the paryers and thoughts for my sweet little guy.   

We did have a GREAT Easter as well!!! It was a rough week leading up to it as Coltyn was in hospital and then I was in hospital as well, but we were BOTH at home and had a nice time with family.  I have included a few pics from Easter of Coltyn and his big sis!!!



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