About Me

MY name is Coltyn and I was diagnosed with Biliary Atresia at 2 weeks old. I was born on April, 30, 2011 a happy healthy little boy. Then I went to the peditrition and I was getting more jaundice and not gaining weight so I had to have blood drawn and that is when they discoved my liver counts were all very elevated for a newborn. From this point on I was refered to STL Childrens and saw a Liver Specialist there. I had a liver biopsy done when I was 5 weeks old and then my kasai done when I was 6 weeks old. For those that dont know Biliary Atresia is a rare liver disease where the ducts in the liver dont form all the way and bile backs up in the liver damaging it. This disease effects 1 in 20,000. Then 80% of the kiddos with this wind up with a liver transplant before the age of 5. I am going to be in the 20% that dont need a transplant until adult hood.

Wednesday, June 19, 2013

2 Years Post Kasai

WOW it is hard to believe that is has been 2 years since Cotlyn had his life saving surgery.  We are so very grateful of the doctors and nurses at St. Louis Children's Hospital.  Because of them Coltyn is still here with us and doing well.  I can remember that day like it was yesterday.  It was so incredibly hard to hand my 6 weeks old over to strangers for a MAJOR surgery.  Without this surgery Coltyn wouldnt still be here today. The staff as the hospital made it a little easier to swallow what was happening to my little boy that day and the days to come.  We are so blessed that Cotlyn has responded like he has with the kasai and is doing well without transplant.  I know that day will eventually come but for now we are just enjoying every minute of him being healthy and able to be a toddler.  Thanks for all the support and for being there with us on this journey.

Coltyn has been doing well since his last hospital stay in March.  He is still on antibiotics and will continue on them until October when we go back to liver doc.
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